LIVING WITH IT WORKING WITH IT TREATING IT
Friday 13th March 2015 was the day I got told I was going to die. Today makes 2 years since that day.
In January 2016, the CEO of NETWORKS Sullivan Partnership, the economic development organization that serves Bristol, Bluff City, Kingsport and Sullivan County, contracted a viral infection called aspergillosis that landed the 52-year-old in Holst
I have Sarcoidosis, Chronic Pulmonary Aspergillosis (CPA) and a very low CD4 count. I have challenged myself to do a daily vlog for 30 days
Follow me on twitter @StewArmstrong
Stewart Armstrong has chronic pulmonary aspergillosis and has undertaken to record a video of every day of his life for a month in order to help raise awareness of aspergillosis and how it impacts their daily lives.
This patient had severe kyphoscoliosis as a child with insertion of spinal rods in early adulthood. She is a life-long non-smoker.
Short history from patient's wife. Brief history and experiences of attending National Aspergillosis Centre
Stewart Armstrong is an aspergillosis patient. A very fit young man he has opted to launch his own campaign to raise awareness and fundraise for Aspergillosis Research.
A patient describes her experience of living with chronic pulmonary aspergillosis and treatment with itraconazole.
Woodrow Maitland tells of his personal experience of having aspergillosis. Like most people he had never heard of aspergillosis when he was finally diagnosed and treated at the National Aspergillosis Centre, Manchester, UK
A collection of video and audio resources intended for patients consisting of self help, patients own stories and patient conference talks.
A patient interview. This patient RW- with long term chronic pulmonary aspergillosis describes his experiences over 18 years during which he has taken various antifungal treatments. He remains well and currently takes itraconazole.
Video interview with patient with an aspergilloma and chronic pulmonary aspergillosis, diagnosed after coughing up blood who later developed azole resistance on voriconazole.
Video Interview with long-term ABPA patient who coughed up large sputum plugs. This patient had several episodes of pneumonia and developed bronchiectasis after diagnosis for a collapsed left lung.
Video interview with patient with childhood asthma and ABPA, who showed a marked improvement in her ABPA and asthma when she commenced nebulised Amphotericin B.
Video interview with this patient with childhood asthma and ABPA. After persistent chest infections and continuous steroids and a bad productive cough, Aspergillus was cultured from sputum in 2002.
Video interview with patient JW with childhood asthma and subsequent ABPA, describes his experience with 3 different azole types of antifungal drugs and who showed a marked improvement when taking posaconazole.
Video interview with Catherine who following a kidney transplant developed severe invasive aspergillosis, but was successfully treated with antifungal drugs.